Very Common, Yet Virtually Unknown
Potentially Fatal, Yet Easily Treatable

Hemochromatosis - Canada's Most Common Genetic Disorder

Hereditary Hemochromatosis (HHC) is the most common genetic disorder affecting Canadians. It is a crippling, potentially fatal condition caused by a defect of iron metabolism that leads to iron overload in vital organs, joints and tissues. The complications caused by the disorder are preventable if a diagnosis is made before the excess iron causes irreversible damage, and effective treatment exists.

Our Purpose

The Canadian Hemochromatosis Society was established to create awareness about this little-known, but common disorder so that early diagnosis would become the rule rather than the exception and needless suffering and premature death from undiagnosed hemochromatosis would become a thing of the past. In the meantime, we are here to provide information and support to those adversely affected by iron overload.

Events

YOU ARE INVITED!
The Canadian Hemochromatosis Society is proudly hosting its first annual IRONS for IRON golf events in three cities across the country during the month of May, hemochromatosis awareness month:

Vancouver Event – Quilchena Golf & Country Club, Richmond, BC
Thursday, May 16, 2013 - 2:00 pm golf with dinner to follow

Cape Breton Event –The Lakes Golf Club, Ben Eoin, Cape Breton
Monday, May 20, 2013 – 12:30 pm lunch with golf to follow

Calgary Event – Speargrass Golf Course, Carseland (southeast of Calgary)
May 30, 2013 – 1:30 pm golf with dinner to follow

IRONS for IRON is a fun day of golf with friends to help support the CHS and build awareness of hereditary hemochromatosis, Canada’s most common genetic disorder. Players of all skill levels are invited to participate. Your registration fee of $200 will cover greens fees, a meal, and door prizes. For those of you who don’t want to golf but wish to support CHS, a $100 registration fee option for the meal only is also available. A donation receipt will be provided for the portion of the registration fee that is in excess of the golf fees and event charges. Early registration is encouraged as spots are limited.

Register here or sponsor the event!

 

The following is a list of information sessions and other events happening in your community.

Information sessions connect hemochromatosis sufferers and their families to others affected by the disorder in the local community. Representatives of the Canadian Hemochromatosis Society will provide information on the treatment and management of the disorder and updates on the activities of the Society locally, provincially, and nationally. Medical professionals, students and other guests are welcome. Information sessions are part of CHS’ Community Outreach Program and are provided free of charge. Call 1 877 BAD IRON (1 877 223 4766) to attend.

Wednesday, May 8 @ 6 am to 8:37 am Atlantic Time
Radio Interview: Information Morning Moncton with Jonna Brewer & Vanessa Blanch
CBC Radio One
Listen live at  http://www.cbc.ca/informationmorningmoncton

Wednesday, May 8 @ 4:30 pm Atlantic Time
Radio Interview: Libre Échange avec Janique LeBlanc
Radio-Canada
Listen live at www.radio-canada.ca/emissions/Libre_echange/2012-2013

Wednesday, May 8 @ 7 pm Atlantic Time
Hemochromatosis Information Session
Future Inns Moncton Hotel and Conference Centre
40 Lady Ada Blvd
Room: Fundy
Moncton , New Brunswick

Thursday, May 9 @ 4 pm Atlantic Time
Radio Interview: CBC Mainstreet PEI with Karen Mair
CBC Radio One
Listen live at www.cbc.ca/mainstreetpei

Thursday, May 9
Television News Story on Prince Edward Island, highlighting the symbiotic relationship between Canadian Blood Services and hemochromatosis sufferers
CBC News: Compass
Story may run anytime between 5 pm and 7 pm Atlantic Time

Saturday, May 11 @ 11 am Atlantic Time
Hemochromatosis Information Session
Best Western Hotel Charlottetown
238 Grafton Street
Room: Stanhope A
Charlottetown, Prince Edward Island
Continental breakfast served

Monday, May 13th @ 6 am to 8:37 am Atlantic Time
Radio Interview: Information Morning Cape Breton with Steve Sutherland
CBC Radio One & CBC Radio Two
Listen live at www.cbc.ca/informationmorningcb

Tuesday, May 14 @ 7 pm Atlantic Time
Hemochromatosis Information Session
Grand Lake Fire Hall
850 Grand Lake Road (beside the Mayflower Mall)
Sydney, Nova Scotia

Wednesday, May 15 @ 7 pm Atlantic Time
Hemochromatosis Information Session
Sydney Mines Old Post Office Building
2 Fraser Avenue (corner of Main Street & Fraser Avenue)
Sydney Mines, Nova Scotia

Friday, May 17 between 8:30 am and 9 am Atlantic Time
Radio Interview: Maritime Morning with Jordi Morgan
News 95.7 in Halifax
Listen Live at www.news957.com/shows/maritime-morning

Tuesday, May 21 @ 12 pm to 1 pm Atlantic Time
Radio Interview: Maritime Noon with Norma Lee MacLeod
CBC Radio One
Listen live at www.cbc.ca/maritimenoon

Tuesday, May 21 @ 6 pm Atlantic Time
Cape Breton Regional Municipality Council Meeting Presentation
320 Esplanade, Sydney, NS

Wednesday May 22 @ 7 pm Atlantic Time
Hemochromatosis Information Session
Hilton Garden Inn Halifax Airport
200 Pratt & Whitney Drive,
Room: Cape Breton
Enfield, Nova Scotia

Saturday, May 25 Pacific Time
Diversity Health Fair Information Booth
Terrace Arena Banquet Room
Terrace, BC
11 am – 4 pm  Free Admission

Watch Our Video

Watch our 8 minute video, "What is Hemochromatosis?", comissioned by the CHS and directed by Jonathan Leduc.

Featured Resource

Medifocus Guide to Hereditary Hemochromatosis is a highly recommended resource for individuals affected by Hereditary Hemochromatosis. Each guide has current and relevant Hereditary Hemochromatosis research organized into categories for easy reading. Free updates are provided for one year. The Medifocus Guide also provides an international Hereditary Hemochromatosis physician finder. A must have!